I updated “Design is Tested at the Edges: Intersectionality, The Social Model of Disability, and Design for Real Life” with selections from “Histories of Violence: Neurodiversity and the Policing of the Norm – Los Angeles Review of Books” to further emphasize nuance and context.

Neurodiversity is a movement that celebrates difference while remaining deeply nuanced on questions of (medical) facilitation and the necessity of rethinking the concept of accommodation against narratives of cure. The added emphasis on neurology has been necessary in order to challenge existing norms that form the base-line of existence: the “neuro” in neurodiversity has opened up the conversation about the category of neurotypicality and the largely unspoken criteria that support and reinforce the definition of what it means to be human, to be intelligent, to be of value to society. This has been especially necessary for those folks who continue to be excluded from education, social and economic life, who are regarded as less than human, whose modes of relation continue to be deeply misunderstood, and who are cast as burdens to society.

Nonetheless, I think it’s fair to say that this enhanced perceptual field is an aspect of much autistic experience and something neurotypicals could learn a lot from, not only with regard to perception itself, but also as concerns the complexity of experience.

What is needed are not more categories but more sensitivity to difference and a more acute attunement to qualities of experience.

Source: Histories of Violence: Neurodiversity and the Policing of the Norm – Los Angeles Review of Books

I updated “Design is Tested at the Edges: Intersectionality, The Social Model of Disability, and Design for Real Life” with selections on intersectionality from “So You Want to Talk About Race”.

Intersectionality, the belief that our social justice movements must consider all of the intersections of identity, privilege, and oppression that people face in order to be just and effective, is the number one requirement of all of the work that I do. When I first learned about intersectionality in college, I honestly had no idea what a huge part of my life it would later become. What was at first an interesting if not abstract theory I wrote about for college papers became a matter of my political, social, spiritual, and yes, even physical survival. Because I am not capable of cutting myself to pieces. I’m not capable of cutting away my blackness in order to support feminism that views the needs of women of color as divisive inconveniences. I’m not capable of cutting away womanhood in order to stand by black men who prey on black women. I’m a black woman, each and every minute of every day—and I need you to march for me, too.

The idea of intersectionality provides a more inclusive alternative to the status quo. Coined by the brilliant race theorist and civil rights activist Kimberlé Crenshaw in 1989, the term “intersectionality” was born from Crenshaw’s work to shed light on the ways in which experiences in both race and gender intertwine to uniquely impact the lives of black women and women of color. Crenshaw referred to those intersections of race and gender as intersectionality and stressed the need to consider intersectionality in our social justice movements.

Intersectionality as a theory and practice was quickly adopted by prominent black feminists to describe the need they saw for a more holistic view of race and gender. From there intersectionality spread to a large section of feminist scholarship and activism and was expanded to include class, ability, and sexuality as well.

Intersectionality, and the necessity of considering intersectionality, applies to more than just our social justice efforts. Our government, education system, economic system, and social systems all should consider intersectionality if they have any hope of effectively serving the public.

Intersectionality helps ensure that fewer people are left behind and that our efforts to do better for some do not make things far worse for others. Intersectionality helps us stay true to our values of justice and equality by helping to keep our privilege from getting in our way. Intersectionality makes our systems more effective and more fair.

So if intersectionality makes all of our social justice efforts so much better, why isn’t it a more prominent part of our social justice movements? I believe there are many reasons that may be why social justice movements have been slow to adopt intersectional practices:

  • Intersectionality slows things down.
  • Intersectionality brings people face-to-face with their privilege.
  • Intersectionality decentralizes people who are used to being the primary focus of the movements they are a part of.
  • Intersectionality forces people to interact with, listen to, and consider people they don’t usually interact with, listen to, or consider.

It’s not enough for you to personally believe in intersectionality. We need to start demanding intersectionality of all those who seek to join us in our social justice movements.

Everything we do publicly can be made more inclusive and uplifting with intersectionality, and everything we do can become exclusionary and oppressive without it. Intersectionality, and the recognition and confrontation of our privilege, can make us better people with better lives.

Source: Oluo, Ijeoma. So You Want to Talk About Race (pp. 74-75, 77-79, 81-82). Da Capo Press. Kindle Edition.

I updated “Compassion is not coddling. Design for real life.” with a selection from “Dear Developer, The Web Isn’t About You | sonniesedge.co.uk”.

“Edge case” is, to be frank, a phrase that should be banned from all developer conversations (and then tattooed onto the forehead of anyone who continues to use it).

When we say “Edge Case” we mean “Stress Case”. In their book, Design for Real Life, Eric Meyer & Sara Wachter-Boettcher point out that what we glibly call an “edge case” is normally an enormously stressful event for a user.

It often accompanies high emotions, stress, physical problems, financial problems, etc. When we discount and dismiss the “edge case”, we’re actually saying “I don’t care about that particular user’s stressful situation”.

Source: Dear Developer, The Web Isn’t About You | sonniesedge.co.uk

I also dropped in these lines.

Without the social model and intersectionality, we’re just bikeshedding injustice. There is no path to inclusive design that does not involve direct confrontation with injustice. “If a direct confrontation of injustice is missing from our strategies or initiatives or movements, that means we are recreating the conditions we’re pretending to want to destroy.

Better than before; still need work; slow iteration.

I updated “Design is Tested at the Edges: Intersectionality, The Social Model of Disability, and Design for Real Life ” with selections from “Basic Principles for Equity Literacy”.

The Direct Confrontation Principle: There is no path to equity that does not involve a direct confrontation with inequity. There is no path to racial equity that does not involve a direct confrontation with interpersonal, institutional, and structural racism. “Equity” approaches that fail to directly confront inequity play a significant role in sustaining inequity.

The “Poverty of Culture” Principle: Inequities are primarily power and privilege problems, not primarily cultural problems. Equity requires power and privilege solutions, not just cultural solutions. Frameworks that attend to diversity purely in vague cultural terms, like the “culture of poverty,” are no threat to inequity.

The Prioritization Principle: Each policy and practice decision should be examined through the question, “How will this impact the most marginalized members of our community?” Equity is about prioritizing their interests.

The “Fix Injustice, Not Kids” Principle: Educational outcome disparities are not the result of deficiencies in marginalized communities’ cultures, mindsets, or grittiness, but rather of inequities. Equity initiatives focus, not on fixing marginalized people, but on fixing the conditions that marginalize people.

Source: Basic Principles for Equity Literacy

Instead of being labeled “children with special needs” they are labeled “children with special rights.”

Source: Reggio Emilia | It’s About Learning

No one knows best the motion of the ocean than the fish that must fight the current to swim upstream.” “By focusing on the parts of the system that are most complex and where the people living it are the most vulnerable we understand the system best.” “When we build things – we must think of the things our life doesn’t necessitate. Because someone’s life does.

Source: Design is Tested at the Edges: Intersectionality, The Social Model of Disability, and Design for Real Life – Ryan Boren

I updated “Compassion is not coddling. Design for real life.”, “Design is Tested at the Edges: Intersectionality, The Social Model of Disability, and Design for Real Life”, “Neurodiversity in the SpEd Classroom”, and “Classroom UX: Bring Your Own Comfort, Bring Your Own Device, Design Your Own Context” with a selection from “From Hostility to Community – Teachers Going Gradeless”.

An education that is designed to the edges and takes into account the jagged learning profile of all students can help unlock the potential in every child.

Source: From Hostility to Community – Teachers Going Gradeless

I updated “Compassion is not coddling. Design for real life.” with a selection from “Dear Developer, The Web Isn’t About You | sonniesedge.co.uk”.

“Edge case” is, to be frank, a phrase that should be banned from all developer conversations (and then tattooed onto the forehead of anyone who continues to use it).

When we say “Edge Case” we mean “Stress Case”. In their book, Design for Real Life, Eric Meyer & Sara Wachter-Boettcher point out that what we glibly call an “edge case” is normally an enormously stressful event for a user.

It often accompanies high emotions, stress, physical problems, financial problems, etc. When we discount and dismiss the “edge case”, we’re actually saying “I don’t care about that particular user’s stressful situation”.

Source: Dear Developer, The Web Isn’t About You | sonniesedge.co.uk

I also dropped in these lines.

Without the social model and intersectionality, we’re just bikeshedding injustice. There is no path to inclusive design that does not involve direct confrontation with injustice. “If a direct confrontation of injustice is missing from our strategies or initiatives or movements, that means we are recreating the conditions we’re pretending to want to destroy.

I’ll further explore the common ground between the social model, intersectionality, and design for real life in a later update, or perhaps a new post.

I updated the compassion and edge cases section of “I’m Autistic. Here’s what I’d like you to know.” with selections from “The Intersectional Presidency – Tressie McMillan Cottom – Medium” and “Black Cyberfeminism: Intersectionality, Institutions and Digital Sociology by Tressie McMillan Cottom :: SSRN“.

By focusing on the parts of the system that are most complex and where the people living it are the most vulnerable we understand the system best.

Source: The Intersectional Presidency – Tressie McMillan Cottom – Medium

No one knows best the motion of the ocean than the fish that must fight the current to swim upstream.

Source: Black Cyberfeminism: Intersectionality, Institutions and Digital Sociology by Tressie McMillan Cottom :: SSRN

I added a selection from “Black Cyberfeminism: Intersectionality, Institutions and Digital Sociology by Tressie McMillan Cottom :: SSRN” to “Compassion is not coddling. Design for real life.” and “Classroom UX: Bring Your Own Comfort, Bring Your Own Device, Design Your Own Context“.

“Essentially, no one knows best the motion of the ocean than the fish that must fight the current to swim upstream. I study fish that swim upstream.”

Source: Black Cyberfeminism: Intersectionality, Institutions and Digital Sociology by Tressie McMillan Cottom :: SSRN

Intersectionality and the social model are powerful tools for understanding systems. Use them to design for real life.

Intersectionality’s raison dêtre is to reveal the systems that organize our society. Intersectionality’s brilliance is that its fundamental contribution to how we view the world seems so common-sense once you have heard it: by focusing on the parts of the system that are most complex and where the people living it are the most vulnerable we understand the system best.

Source: The Intersectional Presidency – Tressie McMillan Cottom – Medium

Real life is complicated. It’s full of joy and excitement, sure, but also stress, anxiety, fear, shame, and crisis. We might experience harassment or abuse, lose a loved one, become chronically ill, get into an accident, have a financial emergency, or simply be vulnerable for not fitting into society’s expectations.
None of these circumstances is ideal, but all of them are part of life-and, odds are, your site or product has plenty of users in these moments, whether you’ve ever thought about them or not.
Our industry tends to call these edge cases-things that affect an insignificant number of users. But the term itself is telling, as information designer and programmer Evan Hensleigh puts it: “Edge cases define the boundaries of who and what you care about” (http://bkaprt.com/dfrl/00-01/). They demarcate the border between the people you’re willing to help and the ones you’re comfortable marginalizing.
That’s why we’ve chosen to look at these not as edge cases, but as stress cases: the moments that put our design and content choices to the test of real life.
It’s a test we haven’t passed yet. When faced with users in distress or crisis, too many of the experiences we build fall apart in ways large and small.
Instead of treating stress situations as fringe concerns, it’s time we move them to the center of our conversations-to start with our most vulnerable, distracted, and stressed-out users, and then work our way outward. The reasoning is simple: when we make things for people at their worst, they’ll work that much better when people are at their best.

Source: Design for Real Life

The products we create can make someone’s day-or leave them feeling alienated, marginalized, hurt, or angry. It’s all depends on whether we design for real life: for people with complex emotions, stressed-out scenarios, or simply identities that are different from our own.

Source: Sara Wachter-Boettcher – Design for Real Life (video)

Technology companies call these people edge cases, because they live at the margins. They are, by definition, the marginalized.

Source: Design’s Lost Generation – Mike Monteiro – Medium