The assurance that “the child will be the customer” underscores the belief – shared by many in and out of education reform and education technology – that education is simply a transaction: an individual’s decision-making in a “marketplace of ideas.” (There is no community, no public responsibility, no larger civic impulse for early childhood education here. It’s all about private schools offering private, individual benefits.)
This idea that “the child will be the customer” is, of course, also a nod to “personalized learning” as well, as is the invocation of a “Montessori-inspired” model. As the customer, the child will be tracked and analyzed, her preferences noted so as to make better recommendations to up-sell her on the most suitable products. And if nothing else, Montessori education in the United States is full of product recommendations.
The image of data-intensive startup pre-schools with young children receiving ‘recommended for you’ content as infant customers of ed-tech products is troubling. It suggests that from their earliest years children will become targets of intensive datafication and consumer-style profiling. As Michelle Willson argues in her article on algorithmic profiling and prediction of children, they ‘portend a future for these children as citizens and consumers already captured, modelled, managed by and normalised to embrace algorithmic manipulation’.
The tech elite now making a power-grab for public education probably has little to fear from FBI warnings about education technology. The FBI is primarily concerned with potentially malicious uses of sensitive student information by cybercriminals. There’s nothing criminal about creating Montessori-inspired preschool networks, using ClassDojo as a vehicle to build a liberal society, reimagining high school as personalized learning, or reshaping universities as AI-enhanced factories for producing labour market outcomes-unless you consider all of this a kind of theft of public education for private commercial advantage and influence.
I updated “Wanted: psychologists, psychiatrists, neuropsychiatrists, and neurologists who…” with selections from “SQUIDALICIOUS: My Comments to the September 2018 IACC on Autism and Health Care Issues”.
Both formal research, and autistic people’s own reports, clearly show that autistic health concerns-including mental health issues-are too often dismissed or misunderstood, and that autistic people are also more likely than the general population to have co-occurring health conditions.
It is only through participatory autism research that we have become aware of matters like the crisis-level rates of suicide and suicidal ideation in autistic people, while studies of commonly self-reported but poorly studied and understood co-occurring conditions like hypermobility or Ehlers-Danlos syndrome are only now emerging. If we are going to properly support autistic people of all abilities to achieve best possible health outcomes, our health care initiatives need autistic guidance.
I would like to see more of this autistic-informed policy integrated into autism education for medical professionals, for matters like accommodations during patient-professional interactions. We need more medical personnel to understand why autistic people-even those technically capable of holding a conversation-can have a debilitating fear of needles, may have difficulty with sensory-intensive procedures like MRIs or EEGs, may have trouble answering questions or self-reporting accurately due to processing, alexithymia, or interception issues, and may have meltdowns when overwhelmed. We must develop strategies for ensuring those autistic individuals are accommodated, so they can receive the care they deserve without being written off as “difficult.”
I would like to see more medical professional awareness about the sensory needs of autistic people both in general, and in medical environments. When my son was recently in the ER at Stanford University, he was given access to a lovely sensory “Imagination Station,” and in addition the flickering fluorescent lights in his room were turned off. Many autistic adults who heard about my son’s experience reported that they too would like access to these kinds of sensory accommodations, but such options, even when available, are usually reserved for children.
I would like to see more outreach to medical schools and other training programs about the need for more neurologists, behavioral psychiatrists, developmental pediatricians, and registered dietitians both in general, and who understand autism specifically. These scarcity of these specialists makes accessing health care even more difficult for autistic kids and adults.
I would like to see investment in “health passports,” like those developed by the UK’s National Autistic Society, to improve autistic people’s hospital and medical experiences. I would like to see encouragement to adopt and support models like the autism and healthcare toolkits and resources developed byAASPIREandUCSF’s Office of Developmental Primary Care, in delineating compassionate, respectful, and useful best practices for patients with developmental disabilities.
I would like to see all autistic people, including those with intellectual disabilities, treated with more respect by medical professionals. Autistic people must to be able to trust the professionals taking care of them if they are to tolerate anxiety-provoking medical environments-yet too often autistic people are not even addressed during in-person conversations about their own health, or they are spoken in a manner more appropriate for speaking to A Very Good Dog (as happened to my son while getting his flu shot just this week). In worst-case scenarios, dismissive attitudes can lead to tragedy, as with the recent death of 18-year-old Oliver McGowan. These attitudes must change, because my son’s life and those of his autistic community members are valuable, and should be treated that way.
Finally, I would like to see recognition that health care access gaps are even more pronounced for autistic kids and adults who aren’t male, autistic people of low socioeconomic status, and autistic people of color, due to well-documented barriers including accessing formal diagnosis, and thus receiving proper care and accommodations. We need investment in easy-read and multilingual autism and health care information. Ideally, we also need investment in “community ambassadors” who can translate and/or advocate for people who may have multiple barriers to resources, and thus to effective self- or family advocacy.
I updated “Created Serendipity: Chance Favors the Connected Mind” with a selection from “Ep. 102 danah boyd “Seeing New Worlds” – Team Human”.
if we don’t support young people in building out a strategically rich graph, they will reinforce the worst segments of our society
When the bubbles popped, and the jobs disappeared, and the debt soared, and the desperation hit, Americans were told to stay positive. Stop complaining – things will not be like this forever. Stop complaining – this is the way things have always been. Complainers suffer the cruel imperatives of optimism: lighten up, suck it up, chin up, buck up. In other words: shut up.
The surest way to keep a problem from being solved is to deny that problem exists. Telling people not to complain is a way of keeping social issues from being addressed. It trivializes the grievances of the vulnerable, making the burdened feel like burdens. Telling people not to complain is an act of power, a way of asserting that one’s position is more important than another one’s pain. People who say “stop complaining” always have the right to stop listening. But those who complain have often been denied the right to speak.
The condemnation of complaining is not unique to America. Dictatorships around the world are famous for self-reported statistics of sky-high happiness. In Uzbekistan, a state run on surveillance, corruption, and torture, 95 percent of the country is said to be content. Last August, one of the openly unhappy 5 percent, a 73-year-old man, filed a complaint about police brutality with neighborhood officials. They arrested him for violating a ban on filing complaints.
The absence of complaining should be taken as a sign that something is rotting in a society. Complaining is beautiful. Complaining should be encouraged. Complaining means you have a chance.
Much of my thinking here has been informed by sex positivity, and how it can be applied to fictional worlds. There are two key principles to the movement: first, active, informed consent in all aspects of sexuality, and second, anything that happens between consenting adults is natural. I particularly like how principle the first flows into principle the second: if you have active, informed consent, then anything consenting adults do afterwards is natural.
And yes, it means consent for everything. Recognising the heroine’s bodily autonomy, her right to decide what happens to it at every point is crucial to these discussions. We need to divorce the idea of sexy from the idea of surprise. Your heroine can be pursued, but she must not be prey.
It means empowering your heroine’s choices—write that contraception scene. This is the genre where it should become so ingrained that women engage only in safe sex—protecting themselves and their partners—that it becomes cliche. Empower your heroines to demand safety, and empower your heroes to deliver it without being asked.
Now, as a historian of the Nazi era, I am drawn to an even starker contrast, this one between how post-World War II Germany and the post-Civil War United States acknowledge their roles in institutions built upon human suffering. Put simply, in coming to terms with its past, Germany eventually elected to memorialize its victims, while the United States, particularly the South, chose to commemorate not the victims but the institution itself and the society that created it. The one society focuses on the victims, the other the defeated. The United States could learn from Germany’s example.
Can the gig economy and the algorithm ever provide high quality preschool? For all the flaws in the public school system, it’s important to remember: there is no accountability in billionaires’ educational philanthropy.
Dominant ideologies, then, have the power to create invisibility in plain sight. Once anything becomes normal, many simply refuse to see what is right their before their eyes.
That problem is grounded in how the marginalized are often positioned with the responsibility to bring that which has been rendered invisible into the light while also being poised to suffer the greatest consequences for that unmasking.
The student stepping back from idealized views of the police in order to acknowledge Baldwin’s criticism is taking a risk in a context that is mostly authoritarian.
A woman scholar taking ethical stances against the powerful current of her field is assuming risk in a context that maintains a false veneer of objectivity and high rigor.
If we are to experience a revolution of recognition, the leverage of those with privilege is essential, to pry away the cloaking in order to see what has been right their in front of our eyes all along.
Whiteness is law, legitimacy, citizenship, the benefit of the doubt. Not-white is doubt. Not-white has to prove, not just once but over and over: 52 traffic stops. Can a white person even imagine? For 52 times Philando Castile had to stop and show his papers, keep his cool, say yes sir, no sir. Had to check the fury that surely rose in him with every stop, every new harassment and humiliation. This remarkable record of self-control should properly be called superhuman. A certain kind of gasbag politician loves to yatter at minorities for their alleged dearths of “personal responsibility,” yet these pols remain blind to a form of strenuous personal responsibility that’s enacted in some fashion several million times a day by people of color in America.