The high rate of anxiety disorders among people on the autism spectrum may be due in part to the issues that people with autism spectrum conditions have to contend with in being part of the ‘neurotypical’ world. On a daily basis, autistic people have to make sense of a world that is extremely hard to decipher, deal with sensory overload (and worry about potential sensory overload), and navigate an often hostile and incomprehensible social world. All of these experiences can contribute significantly to a person’s anxiety levels. In addition, the autistic traits of perfectionism, preference for structure/routine and repetitive behaviours can all add to the levels of anxiety.

In trying to make sense of the world, people with autism often want to imagine the outcomes of events or situations that involve them. This may start from the position of trying to make the world less stressful by creating a picture or map of the future so that change or new experiences don’t seem quite so daunting.

Source: Purkis, Yenn; Goodall, Emma; Nugent, Jane. The Guide to Good Mental Health on the Autism Spectrum (pp. 44-45). Jessica Kingsley Publishers. Kindle Edition.

Or by creating lists. Lots of lists.

I’m leaning heavily on playlist making as a coping mechanism right now. Here’s my “Chronic Neurodivergent Depressed Queer Punk” playlist of mental health related punk and punk-adjacent songs.

Themes/CW: suicidal ideation, addiction, mania, depression, dysphoria, chronic illness, anxiety, overwhelm, panic, meltdown, masking, burnout, OCD, ADHD, ADD, SPD, bipolar, autism

https://music.apple.com/us/playlist/chronic-neurodivergent-depressed-queer-punk/pl.u-yZyVVjZtYzXDqW

Sensory Flooding and the Roundabout Hypothesis

“New research finds that #autism isn’t just about the brain. If you dampen the overexcitement of tactile sensors outside the brain, suddenly the brain doesn’t have to deal with that flood of incoming signals. It helps anxiety & social too.

Source: AspergersAutismNews on Twitter

What’s even more interesting is that once this over-ramping of incoming signals happened, it directly led to an increase in anxiety. That makes sense. If your brain is dealing with lots of additional input, it’s being stressed. Second, that over-ramping of incoming signals also lead to social issues. Again, it makes sense if the brain is already swamped with sensory signals that it doesn’t have extra time to deal with facial expressions and relationships. So everything here is related.

Source: Tactile Sensitivity Autism and Neurons – Aspergers Autism News

But, what about if your brain takes in too much information at once?  The second photo shows a roundabout where there’s too much traffic happening from all directions.  Gridlock.  Now, nothing can get through.  (Well, maybe cyclists.  They can always get through somehow.)  But the rest of us, stuck, overheating, beeping horns or collapsed in a heap of despair, going nowhere.  Some autistic brains take in so much information that they can’t get any of it processed and sent on its way.

When it happens, our brains simply have to wait for the ‘traffic’ to clear.  Just adding more traffic to it won’t work.  More ‘traffic’ might be chatting with us, or trying to put a hand on a shoulder without our consent.  Or shouting at us.  Or making us stay in a busy, noisy place where the queue of ‘traffic’ waiting for our brains to process it just gets longer, and longer.  It might be more ‘traffic’ from our brain trying to work out how to speak, or how to understand non-literal language.

We need the traffic to stop arriving. Noise cancelling headphones help me. Sunglasses help, too. A quiet room without bright artificial lighting also helps. Wearing comfortable clothes so that there’s isn’t a constant traffic jam from the, for example, ‘Your socks are hurting you’ lane.

Find out what helps us reduce the ‘traffic’.

Source: Ann’s Autism Blog: Roundabout Hypothesis – a Guest Blog by Chris Memmott

People with ASD commonly experience aberrant tactile sensitivity: a seemingly innocuous touch, such as a gentle breeze or a hug, can be unpleasant or even painful (1, 2). In fact, sensory overreactivity is so common that it is now a diagnostic factor for ASD (2).

We therefore sought to determine whether somatosensory circuits were affected in ASD, and whether altered tactile sensitivity might contribute to other ASD traits. Our goal was to focus on tractable symptoms-somatosensory abnormalities-as an entry into these complex, heterogeneous disorders.

Together with a growing body of other research (_3_, _4_, _16_-_18_), our work highlights that peripheral sensory neurons have a major role in ASD and that selective treatment of these neurons has the potential to improve some developmental and behavioral abnormalities associated with ASD. We are moving toward measuring touch overreactivity in humans with ASD and pursuing modulation of peripheral neuron excitability as a potential clinical therapy.

Via:

I was fine chattering away to myself, singing or making sound patterns, in order to close out the impact of the invasiveness of others, and being told to shut up only heightened the desire to surround myself with the sound of my own voice. If I was expected to reply, however, this was the complete antithesis. Hearing myself speak in my own voice in acknowledged connection to the world was excruciatingly personal and felt like fingernails down a blackboard.

Source: Williams, Donna (2002-09-14T23:58:59). Exposure Anxiety – The Invisible Cage . Jessica Kingsley Publishers. Kindle Edition. 

I’m also a vocal stimmer who shuts down when speaking.

I was fine chattering away to myself, singing or making sound patterns, in order to close out the impact of the invasiveness of others, and being told to shut up only heightened the desire to surround myself with the sound of my own voice. If I was expected to reply, however, this was the complete antithesis. Hearing myself speak in my own voice in acknowledged connection to the world was excruciatingly personal and felt like fingernails down a blackboard.

Source: Williams, Donna (2002-09-14T23:58:59). Exposure Anxiety – The Invisible Cage . Jessica Kingsley Publishers. Kindle Edition. 

It wasn’t that the volume was too loud so much as that in the grip of an adrenaline rush everything was sensorily too much. The intense ‘pain’ was that the personal, individual, me-ness in it was unbearable. I was allergic to the experience of my own existence and the experience of hearing my own voice speaking from connected expression as me could, at times, be far worse than the terrible feeling you get hearing your own voice on an audio tape or answerphone.

Source: Williams, Donna (2002-09-14T23:58:59). Exposure Anxiety – The Invisible Cage . Jessica Kingsley Publishers. Kindle Edition. 

Computers as the essential prosthetic device for autistics?

Despite a common history of what can, with the wisdom of hindsight, be termed “oppression”, the limited social, networking, and organisational skills of people with AS together with their aversion to direct human contact, had prevented them joining together to form an effective movement to address their specific issues. All this changed however with the advent of the Internet. Computers are the communications medium par excellence for autistics. A significant number of autistics claim that computers mirror the way their minds work (Grandin, with Blume, 1997). By filtering out all the sensory overwhelm caused by actual physical presence, computers free up autistics’ communicative abilities.

InLv members regularly sing the praises of the new medium that allows them to have the form of communication they desire, while protecting them from the overwhelming sensory overload and rapid processing demands of human presence. For many, email lists are their first experience of community. Jane Meyerding, a member of InLv makes clear just how much autistics owe to computer technology:

Like a lot of ACs (autistics and cousins), I find myself able to enjoy “community” for the first time through the internet. The style of communication suits me just fine because it is one-on-one, entirely under my control in terms of when and how long I engage in it, and, unlike real-life encounters, allows me enough time to figure out and formulate my responses. In real-world encounters with groups—even very small groups—of people, I am freighted with disadvantages. I am distracted by my struggle to identify who is who (not being able to recognise faces), worn out by the effort to understand what is being said (because if there is more than one conversation going on in the room, or more than one voice speaking at a time, all the words become meaningless noise to me), and stressed by a great desire to escape from a confusing flood of sensation coming at me much too fast. (Jane Meyerding – Thoughts on Finding Myself Differently Brained, 1998)

As this statement shows, for autistics, computers are the essential prosthetic device, one which turns them from withdrawn, isolated individuals, to networked social beings, the prerequisite to effective social action, and a voice in the public arena.

Autistics compare the importance to them of computers with the importance of seeing-eye dogs to the blind. Martijn Dekker, who is the ‘owner’ of the InLv email forum, and a prominent autistic activist foreshadows puts it plainly:

For reasons obvious to our HFA/AS community, I consider a computer to be an essential disability provision for a person with Asperger’s. (8 Nov 1998)

Source: NeuroDiversity: The Birth of an Idea by Judy Singer

See also: Bring the backchannel forward. Written communication is the great social equalizer.

Autism is simply an internal human ‘normality’ with the volume turned up. We all have experienced moments when we aren’t quite aware or when we are too aware to handle the world. Or moments when we aren’t quite aware of the company we are in or so overly aware of it that it gets hard to function. We all have had times when we’ve had hardly any awareness of our bodies, even been out of them, or felt so in, weighed down by them, that we become hypercritical, eager to escape, tune out, disappear. We have all had times when we’ve lost the plot, the why, the what or been distracted by the meta-reality inside our heads to the extent that we are suddenly jolted out of a daydream. So too, have we all had moments when we have been so aware that we have taken things in in almost overwhelming, extreme detail. For me, the experience of ‘autism’ is not of any of these things in themselves, but rather the frequency and extremity with which they are experienced and the degree to which these experiences affect how one expresses oneself and relates to one’s inner world and the outer world. It’s a matter of whether you visit these states or whether you’ve lived there.

Source: Autism and Sensing: The Unlost Instinct

Via: Inclusive Education for Autistic Children: Helping Children and Young People to Learn and Flourish in the Classroom